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infantile spasms west syndrome epilepsy seizures hypsarrhythmia eeg childhood epilepsy infant seizures developmental delay information myclonic baby acth

About Us

About Us :

We are Parents of Jacob, our boy was diagnosed with Infantile Spasms in May 2007. 

We have decided to run this website to provide a "one stop shop" for understandable information on infantile spasms.

We have developed this website, to help other families and professionals when searching for information on infantile spasms.  Because of the nature of the condition, and our experiences searching the internet when we first heard about IS.  We wanted to provide relevant content that was realistic, but not totally negative.

We have provided information on epilepsy which is closely associated with infantile spasms  and reference links to other good website resources for infantile spasms and epilepsy, that are well worth a visit.

Donations :

Any donations we receive will be used to maintain this website and support research into Infantile Spasms.

Contact Us :

info@infantile-spasms.org

 

 

Infantile-Spasms.org

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